Plans for the day

Ben received some balloons and a teddy bear (thanks Parkinsons!!) that he likes to play with. He is kind of just zoning most of the time (go figure) but wakes up a little here and there and plays with the balloons. He has been a little light sensitive today so we have the window shades pulled to keep it less bright in the room.

Today they are watching sodium levels and swelling mainly. Ben is really groggy. He likes having his mom close and you can tell when the pain meds start to wear off because he kind of whimpers and rubs his head and immediately starts to want Cari close. He has some additional swelling in his face that they say will get worse before it gets better -- gives him kind of an alien-esque look.

We are scheduled for an MRI today to confirm that they got everything out. We thought we were "next in line" early this morning but it looks like we will get in around 3pm or so. Could bode for a long day as Ben can't eat anything until after it is over. The doctors and nurses continue to be wonderful. It is impossible to feel sorry for yourself here. You look around at all of the things going on with all of these children and feel extremely blessed.

Dad gets impatient because sitting around doing nothing (except blogging of course) gives my brain WAY too much free time. Cari is fantastic. Here mommy radar is right on. She just seems to be able to sense changes before they come and roll with them. She notices all of the little things. Yesterday she commented on how supported we have been. As we move around the hospital not everyone's phone is ringing, not everyone seems to have "someone" there. I think most of the tears we have shed the last couple of days are from gratitude for all everyone is doing for us. I can't begin to express our gratitude.