Friday, March 19, 2010
Bad News
Well, we got a call from the oncologist here in Alaska with bad news. She said the MRI image with contrast was "lighting up" at the tumor spot. This may be an indication that tumor activity has begun again. After talking to our contact in Seattle I learned that it may also just be scar tissue. The scans are on their way to Seattle and she will call when they get them there. Also, the tumor board meets on Wednesday and will most likely be reviewing Ben's scans at that time. I'm not sure what we are feeling at this time. Ben is an amazing little boy. We love him and are grateful for the quality of life that he has had despite his disease. We hope to have many more happy moments with him. Whatever the outcome... all is well. We are an eternal family. God does comfort and watch over us. And we are so grateful for that blessing. --Cari
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Hey, I think my daughter Zoe (an ATRT patient at Seattle Children's in 2008) went through the same protocol as Benjamin (high dose chemo & stem cell rescue, proton radiation)... Anyway, she had a "spot" show up on MRI a while after treatment ended. Over time the spot got smaller and smaller and now it isn't there anymore. They chalked it up to "radiation-related changes." I have seen this same thing happen with a few other ATRT kids who had proton radiation. Possibly that's what is happening for Benjamin now. Take care, Mette Earlywine (www.caringbridge.org/visit/zoeearlywine)
ReplyDeletePrayers are with you!
ReplyDeleteYou're amazing and we will keep Benjamin in our prayers.
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