We have been meeting with our Anchorage team members for a couple of weeks now. Good news, it looks like Ben will be getting his catheter out on Wednesday. WAHOO, no more plastic covered baths and "one-sie" undershirts that are not nearly long enough for his long torso! I think Cari was considering "dropping" some scissors nearby and "accidentally" ruining the tubes if there had been any hesitation about removing the catheter. Ben is more than ready not to be forced into maintance cleaning episodes any longer. We are scheduled for our next MRI and lumbar puncture on the 28th and will hopefully see no signs of returned cancer.
For now, Ben is loving running around with his siblings. He hates getting left out of any game or rough-housing. He has all the moves of Kung Fu Panda and can flash his lightening bolt just like Lightening McQueen. His sisters can hardly leave him alone. The only time they seem to leave him is when they are fighting to be nestled into mom's side, and with only two sides and five kids there is a significant amount of rooting, pushing, pulling and jockeying for position (and usually some tears . . .).
We are so grateful for the continued support of our family from everyone. We have truly been blessed through this experience.
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I'm glad they are taking the catheter out! I can picture Cari coming up with a good plan as to why it HAD to come out! Reece and Benson LOVE Ben's toys. They continually fight over them. We sure miss you guys. You're awesome and maybe someday we can be neighbors! I would love that. Oh, I should mention that Cari is a celebrity in our ward. Sister Romish took all her quilts and wall hangings to church to show everyone. She cried everytime she talked about Cari and so did I.
ReplyDeleteAmen to what Juliaan said. We miss you too and think of you often. Ginny talks about Ben. We still have to send up that package hopefully in the next day. Take care!
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