Memorial Day

Benjamin has watched a little too much Dora the Explorer. When we got ready to head out for our Memorial Day festivities, Ben had to take along a "back pack".

First we headed out for great burgers. Ben mostly ate a chocolate malt.

After lunch we went to a park with a bunch of animals...chickens, ducks, owls, and bison to name a few. (Okay Ben might have killed a garden gnome before heading to the park but....that's another story!)

The park was HOT so we decided to have a swim in the pool when we got home. Kelly devised this great plan to keep Ben's tubes from getting wet. The "pool in a pool" was a lot of fun. It felt like you were laying on a water bed. The millions of balls turned out to be a colorful and entertaining addition to the pool as well!

These are Ben's tubes. They are supposed to be covered by the plastic bandage attached to his chest but.... you can see them hanging out the bottom of the bandage. We have tried most everything to try to keep him bandaged up.

We had a marvelous Memorial Day!

Just Visiting

It was great to see family after nearly two years away. Elizabeth and Megan were very excited to finally get done with school and to get to "town". Ever since we moved to Alaska the girls have refered to Utah as town. I guess they feel like AK is the boonies. It may have something to do with the fact that half of the street just off ours is still unpaved. Nathan and Sammy were very glad to see their siblings and I don't think Sammy got more than a couple of feet away from me for more than 15 minutes for the whole time we were there.

I arrived here in Houston yesterday. It was GREAT to see Cari and Ben. Though the morning was a lot harder than I thought it would be (leaving the kids) I was excited to see my beautiful bride and baby. Ben has been going non-stop. We went to Jim and Melissa Kellers for dinner and had a great time. Unfortunately, Ben fell asleep on the way home so he was up forever. We went to the Houston Waterfall today and Ben chased pigeons and ran away from Cari and I as often as he could. We enjoyed a leisure lunch with Kelly and Quincy and then have been lounging around Ronnie Mac's this evening.

Cari seems to feel like she needs to entertain. "What do you want to do now? . . . . ." I have been to her a lot like Sammy was to me in Utah -- not more than foot or two away for more than a minute. I think she must feel like she has a giant freakish growth attached to her hand all the time. Anyway, I am having fun just being close for a few days.

It feels really redundant to say, but I cannot thank everyone enough for all of the support and love we have felt. We are especially grateful to Grandma and Grandpa Allred for taking on four very active children. We were teasing Grandma today wondering what she was thinking. There is no way we would be able to do what we have been able to, nor what we will need to without all of their help.

We love you all!!

Accident Prone?

It's not going to be the cancer that gets Ben.....He has fallen and banged his head up so many times recently! I don't know if he's unsteady because of the radiation, if he can't see because he is totally farsighted, or if he is just a regular active little toddler. His knees and elbows are covered with scrapes. His shins are covered with bruises. I am pretty sure its all just normal...but with as many bumps and bruises as he has you begin to feel like a bad parent. Last weekend he tried on our cousins shoes. They were way too big and he fell hitting his cheekbone on the edge of the window sill. Huge bruise of course. Then on Wednesday we stopped at a little park to play for a minute and he fell through some metal bars. He hit the back of his head on a bar and some how managed to make an inch long gash along a huge bump where he hit. I used tape to close the gapping wound and then the nurse dressed it for me at radiation therapy the next day. On the way home from therapy he decided to climb out of the stroller as I was jogging across the street. Horns started honking and then I heard a thud thud as I ran over Benjamin with the stroller. He, of course, landed on the back of his head rebruising the bump on the back and adding scratches around the newly bandaged wound. The next night he walked of a curb.....and last night he tripped and hit the front of his head on the end of a slide. Can we say accident prone! Like I said, it won't be the cancer that gets little Ben! Despite it all, he seems to be VERY happy especially when he is hanging out at cousin Kellys house!

Chuga chuga choo choo

From the minute we pull away from the Ronald McDonald house you can feel the stress melt away! It's so nice to be on vacation with cousin Kelly again! This weekend was as fun as the last. We ate well and played hard! Here is a picture of Ben and his cousins waiting to ride on a mini train.

Mommy sat right behind Ben to make sure he didn't fall off...or just climb off mid ride! You never know with Ben. His love for escaping continued this week as he learned he can open a car door while driving down the road!

Look close... he's about to jump! (Both feet are on this side of the track.)

See you later choo choo! We're off to the store to buy chocolate for the chocolate fountain party tonight!

Galveston

Ben loved playing at the beach in Galveston!

(Almost as much as his mommy....)

Keeping him out of the water was a bit difficult.

Fortunately there was plenty of sand!

Way too short

We had a great visit with Cari and Ben in Houston over the Mother's Day weekend. Megan, Lizzy, and I are sitting in the George Bush Int'l airport waiting for our flights to Salt Lake and then on through to Anchorage. Wish us luck, our flight is 30 minutes late here departing and we have 10 minutes in SLC to get from the B to the D gates. Not much of a chance but we'll see . . .Worst case Delta is paying for hotels and meals in SLC if we miss our connection because the delay is due to mechanical difficulties.

It was really interesting to see the Proton Therapy machine. First, Cari walked over to the bed with Ben and they injected him with a sedative, about one second later -- flop, he is out like a light. They put the mask on him that holds his head in place and he looks like some little psycho hockey goalie laying there. They showed us the 12X12X2 inch solid brass plates that they use to direct the proton beams and the same size plastic looking plates that focus the depth of the beam. Pretty cool stuff.

On Friday we arrive late because of delays and did not get to see Cari and Ben until around 330pm. We picked them up and headed for Jim and Melissa Kellers house. The Kellers are some AMAZING neigbors from when we lived in Clinton, UT. After we hooked up with them we headed to the beach at Galveston. The wind looked like it was howling so we were worried it might be cold. When we stepped out of the car we remembered where we were. The wind, though blowing, was very warm. The water too. We hunted for seashells, jumped waves, built sand castles and played for hours. That night we had crawfish for dinner. My first time having crawfish. They were pretty good. We ate a ton.

Saturday, we spent a great day with the Kinneys at their pool. We swam, ate, swam, ate, you get the picture. Though we sunblocked pretty good we all ended up getting pretty fried. The girls were pretty miserable with sunburn that night.

Sunday, we double dipped and went to Church with Kinneys and then ate lunch. Then we headed to Kellers for dinner. It was great fun to hang out and relax both places.

Today, Monday, went way to fast. We went to Ben's treatment as I noted above and then pretty much ate lunch and headed for the airport.

Well, they are going to board soon. Hopefully we will make our connection in Salt Lake. We are already missing Cari and Ben more than I can describe. This was a good visit, but, again, being apart may be one of the biggest challenges of this whole adventure. We love you Cari and Ben!!

See you in a couple of weeks!!

It has begun...

Today was the first day of Ben's radiation treatment. Something wasn't quite ready so he wasn't able to go in until noon. That meant he was very hungry because he hadn't eaten since dinner the night before! When we arrive each day we check in at the front desk before going downstairs to the recovery room. His nurse meets us there to take his vital signs. After that we are taken to the radiation room. The machine looks like something out of a sci-fi movie. I sit on the bench holding him and they hook up an iv to his hickman catheter. The nurses and radiology doctors sing to him as the white milky fluid enters his bloodstream. It doesn't seem to take long, seconds really before he falls asleep. Then they take him from my arms and I leave the room. The next time I see him is in the recovery room where I wait for him to wake up. He was HUNGRY today. He ate a fig newton and then drank a bottle of Boost as we walked back to the Ronald McDonald House. His personality seemed fine. He wanted to play but wanted me to carry him while he played. I'm not sure if he was tired from sedation or radiation or if he had a headache... by evening he was running around on his own again though. I think we'll be okay, but I'm still a little bit anxious. We won't know the long term effects (loss of IQ, behavioral problems, etc...) for a long time. AND....did I mention how badly I miss my other babies!!!!!!